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Behind The Mask Of Moebius Syndrome

Author: Cristina Faragli
Publisher: McFarland
ISBN: 0786498382
Size: 14.85 MB
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Moebius syndrome is a rare congenital neurological disorder affecting two to 20 out of every million newborns. Patients suffer from total facial paralysis and often cannot even close their eyes or move them from side to side. Unable to smile, frown or otherwise express emotion, their everyday personal relationships are deeply affected. Even eating (chewing) is a problem. This memoir of a woman with Moebius syndrome provides a first-person view of life "behind the mask."

Culture And Explosion

Author: I︠U︡riĭ Mikhaĭlovich Lotman
Publisher: Walter de Gruyter
ISBN: 3110218453
Size: 36.44 MB
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Demonstrates, with copious examples, how culture influences the way that humans experience 'reality'. This work is suitable for students and researchers in semiotics, cultural/literary studies and Russian studies worldwide, as well as anyone with an interest in understanding contemporary intellectual life.

The Child Who Never Grew

Author: Pearl S. Buck
Publisher: Open Road Media
ISBN: 1453263594
Size: 38.52 MB
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A “groundbreaking” memoir about raising a special-needs daughter in an era of misinformation and prejudice—a classic that helped transform our perceptions (Publishers Weekly). It was my child who taught me to understand so clearly that all people are equal in their humanity and that all have the same human rights. Pearl S. Buck is known today for earning a Nobel Prize in Literature and for such New York Times–bestselling novels as The Good Earth. What many do not know is that she wrote that great work of art with the motivation of paying for a special school for her oldest daughter, Carol, who had a rare developmental disorder. What was called “mental retardation” at the time—though some used crueler terms—was a disability that could cause great suffering and break a parent’s heart. There was little awareness of how to deal with such children, and as a result some were simply hidden away, considered a source of shame and stigma, while others were taken advantage of because of their innocence. In this remarkable account, which helped bring the issue to light, Pearl S. Buck candidly discusses her own experience as a mother, from her struggle to accept Carol’s diagnosis to her determination to give her child as full and happy a life as possible, including a top-quality education designed around her needs and abilities. Both heartrending and inspiring, The Child Who Never Grew provides perspective on just how much progress has been made in recent decades, while also offering common sense and timeless wisdom for the challenges still faced by those who love and care for someone with special needs. It is a clear-eyed and compelling read by a woman renowned for both her literary talent and her humanitarian spirit. This ebook features an illustrated biography of Pearl S. Buck including rare images from the author’s estate.

Ugly

Author: Robert Hoge
Publisher: Penguin
ISBN: 0425287769
Size: 75.31 MB
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A funny, moving, and true story of an ordinary boy with an extraordinary face that's perfect for fans of Wonder—now available in the U.S. When Robert Hoge was born, he had a tumor the size of a tennis ball in the middle of his face and short, twisted legs. Surgeons removed the tumor and made him a new nose from one of his toes. Amazingly, he survived—with a face that would never be the same. Strangers stared at him. Kids called him names, and adults could be cruel, too. Everybody seemed to agree that he was “ugly.” But Robert refused to let his face define him. He played pranks, got into trouble, had adventures with his big family, and finally found a sport that was perfect for him to play. And Robert came face to face with the biggest decision of his life, he followed his heart. This poignant memoir about overcoming bullying and thriving with disabilities shows that what makes us “ugly” also makes us who we are. It features a reflective foil cover and black-and-white illustrations throughout. From the Hardcover edition.

The Recognitions

Author: William Gaddis
Publisher: Columbia University Press
ISBN: 156478696X
Size: 52.35 MB
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A great masterpiece by William Gaddis, with a new introduction by William H. Gass.

Rethinking Architecture

Author: Neil Leach
Publisher: Routledge
ISBN: 1134796285
Size: 21.19 MB
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Brought together for the first time - the seminal writing on architecture by key philosophers and cultural theorist of the twentieth century. Issues around the built environment are increasingly central to the study of the social sciences and humanities. The essays offer a refreshing take on the question of architecture and provocatively rethink many of the accepted tenets of architecture theory from a broader cultural perspective. The book represents a careful selection of the very best theoretical writings on the ideas which have shaped our cities and our experiences of architecture. As such, Rethinking Architecture provides invaluable core source material for students on a range of courses.

New York Magazine

Author:
Publisher:
ISBN:
Size: 13.62 MB
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New York magazine was born in 1968 after a run as an insert of the New York Herald Tribune and quickly made a place for itself as the trusted resource for readers across the country. With award-winning writing and photography covering everything from politics and food to theater and fashion, the magazine's consistent mission has been to reflect back to its audience the energy and excitement of the city itself, while celebrating New York as both a place and an idea.

Herbal Remedies Of The Lumbee Indians

Author: Arvis Locklear Boughman
Publisher: McFarland
ISBN: 9780786426843
Size: 33.10 MB
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“There’s nothing happens to a person that can’t be cured if you get what it takes to do it. We come out of the earth, and there’s something in the earth to cure everything ... I don’t fix a tonic until I’m sure what’s wrong with a person. I don’t make guesses. I have to be sure, because medicine can do bad as well as good, and I don’t want to hurt anybody.... Maybe it takes some herbs. Maybe it takes some touching. But most of all, it takes faith”—Vernon Cooper, Lumbee healer. The Lumbee Indian tribe has lived in the coastal plain of North Carolina for centuries, and most Lumbee continue to live in rural areas of Robeson County with access to a number of healing plants and herbs used in the form of teas, poultices, and salves to treat common ailments. The first section of this book describes and documents the numerous plant and herbal remedies that the Lumbee have used for centuries and continue to use today. There are remedies for ailments relating to cancer (external and internal), the circulatory and digestive systems, the heart, hypertension and hypotension, infections and parasitic diseases, asthma, pregnancy, sprains, swellings, and muscle, skeletal and joint disorders, to name just a few. The second portion of this work records the words, recollections and wellness philosophies of living Lumbee elders, healers, and community leaders. The information presented in this book is not intended to be a substitute for the advice or treatment from a physician. The authors do not advocate self-diagnosis or self-medication, and warn that any plant substance may cause an allergic or extremely unhealthy reaction in some people.

The Chronically Ill Child

Author: Audrey T. McCollum
Publisher:
ISBN: 9780300027822
Size: 79.16 MB
Format: PDF
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Practical advice and support for parents of chronically ill children and those involved with their care. Focuses on ways to meet the physical and emotional challenges and to make the ill child's quality of life as meaningful as possible. "A valuable book."--Benjamin Spock

Rare Diseases Diagnosis Therapies And Hope

Author: Ana Sanfilippo and
Publisher:
ISBN: 9781320075657
Size: 62.23 MB
Format: PDF, Docs
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This book gives readers a firsthand look at the impact genome sequencing and other advanced techniques are having on rare diseases. It is unique in that it goes beyond the clinical side of the topic and includes very personal stories told by the families living with rare diseases. “These rare diseases are collectively so common, affecting over 300 million globally,” says co-author Dr. Jimmy Lin, MD, PhD, MHS. The key to assembling such a comprehensive resource was the year long process to examine the topic from all sides. The guide brings together interviews and visits with families that are currently battling rare diseases along with leading experts. The results of all this hard work is a valuable resource that will educate and inspire hope. “We are part of a growing movement to raise global awareness of rare diseases, and we are so pleased to be able to offer one of the early books for families living with rare diseases,” said the book’s co-author Ana Sanfilippo. The book includes expert interviews and remarkable stories from families like: - Amylynne Volker, whose son was the first child saved through DNA sequencing - Dallas police officer Mark Dant who raised over $3M for research that saved his son Ryan’s life - John Crowley, who saved his own children’s lives through creating a new company to develop a new drug, which is now the standard of care - Retta Beery, whose twins, Noah and Alexis, are alive due to her own exhaustive medical research and genomics. Please note there is no markup on the book and that the price is the Blurb book price only.